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Β Posing away…………… |
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Started phase 2 today. This 4 week period involves –
3 Spinal taps – one every monday starting today
She is never happy and very anxious when they are going to be accessing her port and hence is not a good morning. She also realizes that they give her anesthesia to put her to sleep which she does not like so another reason for anxiousness. We are hoping as the weeks progress she will get used to it so she is not as unhappy. Outside of that, once procedure is done and we are headed home, all is well. Had a good day playing with a friend and doing artwork and making presents for mommies bday.
Tue – Slept through the night and woke up fresh. First trip to the grocery store after 6 weeks. She had fun “driving” the cart and helping mommy pick stuff.
Spent afternoon playing with Anvi and Roma. Went outside and the girls picked some rocks for coloring. Had an overall good day and went to bed happy.
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Posing away……………
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He also said that this treatment would not hamper her chances of bearing children(long time away, but good to know), would not have any effect on her IQ so in short would not have any long term serious side effects. The couple things that may get effected if at all, are that she could be an inch or so shorter than had she not undergone treatment or maybe her focus levels may need to be worked on, but again nothing detrimental.
Have been told to make the most of this month since she will be recovering from first month’s heavy medications and be more herself. Should take her out, walking, playing, regular activities so as to bring her back to normal.
With having said that, we went to the Franklin Museum of Science with her after the appt at CHOP since we were right there. Aanya had fun exploring the heart and seeing the show in the Planetarium, but if you ask her what she liked most about the museum, she will prolly say the cafeteria.
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Day 36, Thursday. Went in to see her oncologist and the highlight of this hospital trip for her was the fact that there was no blood work required and hence they would not need to access her port. Treatment plan was discussed as attached below.
Next phase, Phase 2, Consolidation to begin on Monday Aug 7. After the hospital meet, we drove off directly to Philly since we had any appt with an oncologist at CHOP for a second opinion. Our oncologist here referred us to this senior oncologist who specializes in ALL and bone marrow transplants. Spent the evening relaxing in the hotel and early to bed since had an 8.15 am appt.
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The most anxiously awaited news which we thought would not arrive until Wednesday came in today. A call from her oncologist sent our hearts spiraling and those few seconds saw emotions with no boundaries till we heard her voice and her first statement – “I am so very happy to tell you i have very good news” Aanya’s bone marrow report came back showing 0% leukemia cells. :-). They were hoping she would reach at least 0.01% which would put her in remission but she exceeded everyone’s expectations. Her oncologist stated that the whole team is extremely happy since they had not expected this. We needed to ask her 3 times to ensure we correctly understood what she was saying and that we were not just hearing something since we so wanted that to be the truth.
We are scheduled to see her oncologist on Thursday to further discuss the report and plan of action for Phase 2. She is also going to guide us and prepare us for our second opinion meeting that we have scheduled for on Friday with an oncologist at CHOP.
We have god to thank, and, all of you, our dear loved ones, for your overwhelming support and prayers for her successful recovery. With your continued support and praying, our angel will ride this wave and come out a strong winner in due course.
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