Day 2, Tues. Slept through the night and woke up fresh. First trip to the grocery store after 6 weeks. She had fun “driving” the cart and …………
Day 2, Tues. Slept through the night and woke up fresh. First trip to the grocery store after 6 weeks. She had fun “driving” the cart and …………
Day 40, Mon. Had a bad night. Was up at 2.30 and cried till 3.45 am since she wanted water. She was not supposed to eat or drink…………..
Day 38-39, Sat and Sun. She had a great weekend. Getting more active with each passing day. Seeing lesser tantrums and mood swings. 👍😊
Day 37, Friday. Met with the oncologist at CHOP and was really glad with all he had to say. Based on her chromosome anomaly, our concern was…..
Day 34-35, Tuesday and Wednesday. Woke up a couple times again for food but slept well beyond that. Getting more and more herself. Learning …..
Day 33, Monday – Woke up a couple times again for food but slept well beyond that. Getting more and more herself. We see our happy chatty angel more and more…..
Day 30, 31, 32 – Day 30, Friday – Did not sleep that well but had a pretty good day. Still working on getting rid of the constipation but………………..
Final day of phase 1 – 3 cheers for the little one who stayed strong and braved the excruciating pain. Yesterday was last day of steroids for this phase. It was a …
Wednesday, did not sleep well last night. Tummy ache kept her up, looks like constipation may be back. All thru the day gave miralax and prune juice and she …