Week 3, Aug 21-27 2017 – Phase2 Consolidation

Day 2, Tues. Slept through the night and woke up fresh. First trip to the grocery store after 6 weeks. She had fun “driving” the cart and …………

Week 2, Aug 14-20 2017 – Phase2 Consolidation

Day 2, Tues. Slept through the night and woke up fresh. First trip to the grocery store after 6 weeks. She had fun “driving” the cart and …………

Week 1, Aug 7-13 2017 – Phase2 Consolidation

Day 40, Mon. Had a bad night. Was up at 2.30 and cried till 3.45 am since she wanted water. She was not supposed to eat or drink…………..

Day 38-39, Aug 5-6 2017

Day 38-39, Sat and Sun. She had a great weekend. Getting more active with each passing day. Seeing lesser tantrums and mood swings. 👍😊

Day 37, Aug 4 2017 – CHOP and Franklin Museum

Day 37, Friday. Met with the oncologist at CHOP and was really glad with all he had to say. Based on her chromosome anomaly, our concern was…..

Day 34-36, Aug 1-3 2017 – Treatment plan

Day 34-35, Tuesday and Wednesday.  Woke up a couple times again for food but slept well beyond that. Getting more and more herself. Learning …..

Day 33 – Jul 31 2017 – Results in – End of phase 1🎉💖😊

Day 33, Monday – Woke up a couple times again for food but slept well beyond that. Getting more and more herself. We see our happy chatty angel more and more…..

Day 30, 31, 32 – Jul 28, 29, 30 2017

Day 30, 31, 32 – Day 30, Friday – Did not sleep that well but had a pretty good day. Still working on getting rid of the constipation but………………..

Day 29, Jul 27, 2017-Final Day of Phase 1

Final day of phase 1 – 3 cheers for the little one who stayed strong and braved the excruciating pain. Yesterday was last day of steroids for this phase. It was a …

Day 28, Jul 26, 2017

Wednesday, did not sleep well last night. Tummy ache kept her up, looks like constipation may be back. All thru the day gave miralax and prune juice and she …