Day 38-39, Aug 5-6 2017

Day 38-39, Sat and Sun. She had a great weekend. Getting more active with each passing day. Seeing lesser tantrums and mood swings. 👍😊

Day 37, Aug 4 2017 – CHOP and Franklin Museum

Day 37, Friday. Met with the oncologist at CHOP and was really glad with all he had to say. Based on her chromosome anomaly, our concern was…..

Day 34-36, Aug 1-3 2017 – Treatment plan

Day 34-35, Tuesday and Wednesday.  Woke up a couple times again for food but slept well beyond that. Getting more and more herself. Learning …..

Day 33 – Jul 31 2017 – Results in – End of phase 1🎉💖😊

Day 33, Monday – Woke up a couple times again for food but slept well beyond that. Getting more and more herself. We see our happy chatty angel more and more…..

Day 30, 31, 32 – Jul 28, 29, 30 2017

Day 30, 31, 32 – Day 30, Friday – Did not sleep that well but had a pretty good day. Still working on getting rid of the constipation but………………..